Parkinson’s Support Group

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September 11, 2023

Presented by Fayga Brisman Taylor, Senior Associate Director, Advancement
Michael J. Fox Foundation

 

Resources:

Fox Insight: Join the 50,000+ individuals who are participating in this online clinical study as we work to understand the lived experience of Parkinson’s patients and speed PD research forward.

Fox Trial Finder: MJFF’s online clinical study matching tool to assist PD patients in finding clinical trials they may be eligible for. We call it the match.com of clinical trials! You can contact study coordinators through Fox Trial Finder and they’ll follow up with you.

Parkinson’s Progression Markers Initiative: MJFF’s landmark study has built the most robust data and biospecimen library in Parkinson’s history. PPMI data has been downloaded more than 14.5 million times, and the study has received more than 200 biospecimen requests. You can take this short survey  to see if you qualify to join the study.

Webinars – On the third Thursday of every month, join our free live webinars to learn about various aspects of living with Parkinson’s disease and our work to speed medical breakthroughs. Log on, listen to the expert discussion and submit your own questions to our panelists.

Ask the MD: To help you and your loved ones navigate life with Parkinson’s, Dr. Rachel Dolhun discusses Parkinson’s research and care through blogs and videos.

Diet and Nutrition: Learn more about nutrition and PD and download the free MJFF Diet Guide.

Team Fox: Team Fox members have raised nearly $100 million for Parkinson’s research since 2006. You too can be part of this passionate community of change-makers who are bringing us closer to a cure. Every penny donated by Team Fox members goes straight to our high-impact research programs to help speed a cure for Parkinson’s disease.

Make a Gift: Even in the face of tremendous challenges, our promise to push Parkinson’s research forward remains steadfast. We operate with focus and determination in everything we do. We won’t stop until a cure is found. Support us today to help us deploy at much research as possible in 2023.

Buddy Network: The Parkinson’s Buddy Network, an online platform designed to connect members of the Parkinson’s community, including patients, caregivers and loved ones of those who have or had Parkinson’s. The platform will allow users to make meaningful connections, engage in important dialogue, find PD resources and build new support systems. During a time of increased distancing and isolation, a tool like this has never been more important or necessary. You can visit https://parkinsonsbuddynetwork.michaeljfox.org/, create a profile and start using the platform. If you have any questions at all or feedback, you can reach out to me directly or the Buddy Network team at info@parkinsonsbuddynetwork.org.